Web Materials: Courageous Conversations Lesson 5

Web Articles

Paul Rousseau, MD “Physicians and End-of-Life Care” American Journal of Hospice & Palliative Care 9 Volume 19, Number 1, January/February 2002

Deborah T. Fahnestock, MSW, “Partnership for Good Dying” JAMA. 1999;282 (7):615-616. doi:10.1001/jama.282.7.615

Ellershaw, John, and Chris Ward. “Care of the Dying Patient: The Last Hours or Days of Life.” BMJ : British Medical Journal 326.7379 (2003): 30–34.

Caring for a Dying Patient – Irish Hospice Foundation, 2013

Lizzy Miles, MA, MSW, LSW “We Don’t Know Death: 7 Assumptions We Make about Dying” Pallimed, August 2014

Glen R. Horst MDiv, DMin, BA “Tips for Talking with Someone Who is Dying” Canadian Virtual Hospice

“The Last Goodbye: Comforting Your Dying Patient” Amednews.com Sept. 10, 2007

Joseph J. Fins, MD; Pauline W. Chen, MD “On Saying Goodbye: Acknowledging the End of the Patient-Physician Relationship with Patients Who Are Near Death,” April 19, 2005, Annals of Internal Medicine (for purchase)

Beverly Rosa Williams, PhD; Donna R. Lewis, MSN, GNP-BC; Kathryn L. Burgio, PhD; Patricia S. Goode, MD “Next-of-Kin’s Perceptions of How Hospital Nursing Staff Support Family Presence Before, During, and After the Death of a Loved One.” Journal of Hospice and Palliative Nursing. 2012;14(8):541-550.

Maureen P. Keeley “End of Life Communication.” Oxford Research Encyclopedias. June 2016

Wenrich, Marjorie D et al. “Dying Patients’ Need for Emotional Support and Personalized Care from Physicians.” Journal of Pain and Symptom Management , Volume 25 , Issue 3 , 236 – 246

Jane Gross, “For the Families of the Dying, Coaching as the Hours Wane.” New York Times, May 20, 2006

Websites

Pallimed

About Pallimed (from website description):

Pallimed was founded on June 8th, 2005 by Drew Rosielle, MD as a way to keep track of interesting articles from many different journals that were relevant to palliative care.  The scope of the blog has expanded to include reviewing media coverage of hospice and palliative care issues.

The contributors to Pallimed are mostly physicians, but we also have a nurse practioner and a PhD on staff.  Speaking of staff, Pallimed is an all volunteer effort.  No grant money, no organizational support, no advertisements.  We do this is our spare time for the love of the field.

Our primary audience are the interdisciplinary health care professionals in hospice and palliative care, but we are happy to see patients, families, media, other disciplines and specialties come here to find information relevant to them.

National Hospice and Palliative Care Organization: CaringInfo

CaringInfo, a program of the National Hospice and Palliative Care Organization, provides free resources to help people make decisions about end-of-life care and services before a crisis.

The Coalition for Compassionate Care of California

The Coalition for Compassionate Care of California (CCCC) promotes high-quality, compassionate care for everyone who is seriously ill or nearing the end of life.

VISION:

Our vision is to create a community where people explore their wishes for care towards the end of life, express these wishes, and have their wishes honored.

Our goal is to transform healthcare so that medical care is aligned with individual patient’s preferences—that people get the care they need and no less, and the care they want and no more.

Ira Byock Website

Dr. Ira Byock is a leading palliative care physician, author, and public advocate for improving care through the end of life.

Hospice Foundation of America

Improving care and knowledge for over 30 years through award-winning programs and expert guidance.