Ariadne Labs: A Joint Center for Health Systems Innovation, “Serious Illness Conversation Guide” (join for free access to guide)
The Conversation Project “Your Conversation Starter Kit: When It Comes To End-Of-Life Care, Talking Matters.” 2014
Forrest Lang and Timothy Quill, “Making Decisions with Families at the End of Life” Am Fam Physician. 2004 Aug 15;70(4):719-723.
American Academy of Hospice and Palliative Medicine “Five Things Physicians and Patients Should Question” February 21, 2013
Linda Haller “What Patients Want To Know About Their Prognosis” March 30, 2017
Patricia A. Barrier, James T.-C. Li, Norman M. Jensen, “Two Words to Improve Physician-Patient Communication: What Else?”, Mayo Clinic Proceedings, Volume 78, Issue 2, 2003, Pages 211-214, ISSN 0025-6196, http://dx.doi.org/10.4065/78.2.211. (for purchase)
Robert M. Arnold, MD and Timothy E. Quill, MD “Hope for the Best, and Prepare for the Worst” 4 March 2003 Annals of Internal Medicine Volume 138, Number 5
Detmar SB, Muller MJ, Wever LDV, Schornagel JH, Aaronson NK. “Patient-Physician Communication During Outpatient Palliative Treatment Visits: An Observational Study.” JAMA. 2001;285(10):1351-1357. doi:10.1001/jama.285.10.1351
Back AL, Arnold RM. “Dealing with Conflict In Caring For the Seriously Ill: ‘It Was Just Out of the Question’.” JAMA. 2005 Mar 16;293(11):1374-81. (for purchase)
Ken Hillman, Jack Chen, “Conflict Resolution in End of Life Treatment Decisions: a Rapid Review” An Evidence Check Review brokered by the Sax Institute for the NSW Department of Health November 2008
Myra Glajchen, Connie Zuckerman, and Charles F. von Gunten “Resolving Conflict and Making Decisions” Journal of Palliative Medicine. June 2001, Vol. 4, No. 2: 221-225 (for purchase)
Phyllis R. Coolen, DNP, MN, RN “Cultural Relevance in End-of-Life Care” May 01, 2012
About Pallimed (from website description):
Pallimed was founded on June 8th, 2005 by Drew Rosielle, MD as a way to keep track of interesting articles from many different journals that were relevant to palliative care. The scope of the blog has expanded to include reviewing media coverage of hospice and palliative care issues.
The contributors to Pallimed are mostly physicians, but we also have a nurse practioner and a PhD on staff. Speaking of staff, Pallimed is an all volunteer effort. No grant money, no organizational support, no advertisements. We do this is our spare time for the love of the field.
Our primary audience are the interdisciplinary health care professionals in hospice and palliative care, but we are happy to see patients, families, media, other disciplines and specialties come here to find information relevant to them.
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. The Conversation Project works in collaboration with the Institute for Healthcare Improvement, a not-for-profit organization that is a leader in health and health care improvement worldwide.
The work of Ariadne Labs is rooted in rigorous scientific methodology and best practices in industry for implementation. Each program and every project is built on a foundation of innovative use of informatics and measurement, implementation and improvement science, and professional program management. We call this the Ariadne Labs Way.
As we seek to transform how care is delivered around the world, we ensure that our programs can be effectively adapted and successfully implemented across thousands of health care facilities and diverse cultures. We continually evaluate and monitor outcomes to ensure that our programs are improving health systems, providing better patient care, and saving lives.
Choosing Wisely aims to promote conversations between clinicians and patients by helping patients choose care that is:
- Supported by evidence
- Not duplicative of other tests or procedures already received
- Free from harm
- Truly necessary
Volume I of the Casebook, Making Difficult Decisions with Patients and Families is a free and open-access online resource for continuing professional education in healthcare ethics for doctors, nurses, and allied healthcare staff. Each case is supported by expert commentaries highlighting ethical issues and a clinical perspective by a healthcare professional offering practical insight. Additional support is provided by informational backgrounders, questions for reflection, and further online resources.